One symptom of multiple sclerosis that drives me nuts is fatigue. It is not a lack of sleep tiredness, it is the kind of fatigue you feel when you have the flu but worse. I wake up and instantly feel like I want to go back to bed. It is one of the worse feelings ever, especially when there is a ton I need to get done. There is more that I just want to do, but fatigue gets in the way and makes me seem lazy. I promise you I am not lazy but MS fatigue has taken over.
I apologize constantly for not getting things done even though no one blames me. I maintain another blog and just thinking about what to write about is enough to make me decide to write another day. I sound like I am complaining. I don’t mean to, I am generally a happy person but my quality of life is affected by my exhaustion.
I told my neurologist about my symptoms and he told me this is a common issue with MS’ers, that is what I affectionately call us. He suggested I try a drug called Nuvugil. I accepted the prescription with hope.
My insurance does not cover my prescriptions and I have to pay out of pocket. The price tag on Nuvugil almost made me decide to not get it as it costs me nearly $400! Luckily, I have a great family who only want the best for my health and gave me the money to pay for it. For that much money I had high hopes that fatigue would be a thing of the past but sadly my hopes have been dashed.
I only noticed a minimal difference taking it. I feel less fatigued for about an hour but then fatigued again and I am only supposed to take it once a day. I still take it because of the money spent on it but I’ve not noticed any difference. Nerve pain and fatigue are the worst of my symptoms and I’d be happy to suffer from one without the other.
I drink coffee and take caffeine pills but that’s not exactly the healthiest way to fight fatigue. I try to stay active in spite of it because I’m young and people depend on me. I take naps but I try not to because I usually sleep too long and waste a huge amount of time. I just want to wake up refreshed and stay that way until evening like a normal person.
Fellow MSer, KM, sent me a long list of meds she has taken. She said Nuvugil gave her left arm and chest pain, Aderall and Concerta increased her anxiety, Ritalin also made her anxious to the point that she had suicidal thoughts to ease the suffering. Others had no effect or caused vivid nightmares.
KM is currently trying Welbutrin which has had no effect so far and her doctor is increasing the dosage. I truly hope this medication witll work for her so she can go on living a fatigue free life.
I would love to hear any suggestions you have. My insurance will be different next year and I’ll have prescription coverage and hopefully my options will expand.
Fatigue is like a prison and I’m ready to escape.
How do you manage fatigue? Any tips or suggestions would be appreciated.