Over the past few years, I have noticed my energy level has decreased and comfort in being alone has increased. With my multiple sclerosis diagnosis socializing has become less often and fun.
Crowded places that are loud and require standing for long periods of time are another obstacle for those with MS. I often try to go early and plan ahead when choosing restaurants and making any sort of get to together. Cognition can be a problem, and hopefully friends understand if we forget what we are going to say or ask them to repeat something.
It is hard to know if any physical, mental or emotional problem is because of multiple sclerosis or just me. I reached out to some other moms with MS and heard similar stories.
Sadly, many are divorced from their partners. Many claimed to have few friends and lose them due to frequently canceling from relapses or fatigue. Others save their energy for their family. Most all long for at least one friend to enhance the quality of life, which is very much needed when living with a chronic disease.
How has your social life changed since your diagnosis?