The school year has started and my kids are getting comfortable in their new classes and we are getting to know their teachers. I am going back and forth on whether I should disclose to the school that I have multiple sclerosis.
Does my chronic illness affect my children while they are at school? Will the teachers judge me?
A Modern Day MS reader shared how she told her children’s teachers and why it was right for her.
“It was incredibly hot his first day, which only consisted of a brief tour with parents. I dressed in my most comfortable and cool (temp cool, not style cool) clothes. I had a frozen water bottle to try to stay cool but the heat knocked me out.”
“While walking through the school I realized sharing my diagnosis was the right choice. We were joining this wonderful school community and multiple sclerosis is a basic fact of our family. Most days it’s a nonissue but when it is, we need our community to help us.”
“I quietly told the classroom Special Ed teacher while walking down the hall. I heard the typical ‘well, you look great’ response but instantly felt more comfortable and more authentically me.”
With that confidence, the same mom with MS, received kindness and a convenient parking spot.
“My daughter also started preschool at a different school where I had to park several blocks away. This short walk in the heat was more than I could handle. Heat hasn’t been much of a problem and I never considered handicap parking.”
“I spoke with the director and she warmly invited me to use the handicap parking anytime I needed regardless if I had my parking placard.”
I asked her if she told her kids about these conversations and her response makes sense.
I’m still thinking about how I can approach my kids’ teachers to share my diagnosis with them. Do you think an email is appropriate or too impersonal?
Do you tell your kids’ teachers that you have multiple sclerosis? Do you have any stories about your experience to share?