I hope I am thought of as a loving mother, wife, sister, daughter and friend. I want to be known as a yoga teacher and writer, not a sick person with multiple sclerosis.
In addition, I strive to be positive and focus on the positive instead of the negative.
With that said, I need to be authentic and honest especially with those that are close to me.
I am lucky and blessed to hear how good I look and am glad my disease doesn’t affect my outward appearance. Still, it is important to share the parts of MS that are not obvious to the human eye.
Instead of approaching my embarrassing symptoms, I hid behind them and distanced myself from those close to me. When talking with my mom, I learned that she felt I was mad or angry with her, when in reality my body was acting in a way out of my control, that I am not proud of.
As a result, I avoided family time, hoping to create less stress and discomfort for anyone involved.
My concerned mom told me she didn’t know what to do when I acted anxious and sometimes even mean.
“I could tell you were uncomfortable and I wanted to give you a hug.”
“You should have.” I responded.
Sometimes there aren’t words to help our body at the time, but hugs, love and understanding are always helpful.
Can you relate? Do you explain to your loved ones why you may not be acting like yourself?