I was diagnosed with relapsing remitting multiple sclerosis in March 1999 after three years of random symptoms. Since then my illness has progressed to secondary progressive with various symptoms that are with me constantly.
- Fatigue – One of the first symptoms I had before I was even diagnosed was excessive tiredness. Considering I was only 27 at the time and full of energy it was very concerning to me. Sometimes I can have full night’s sleep and still be exhausted.
- Nerve pain – Another early symptom was muscular pain throughout my body. At the time my specialist told me that pain was not a symptom of MS but has since been recognized it as common. My nerve pain has gotten worse over time.
- Numbness – I get pins and needles all over my body but the worst part is getting them across my face.
- Depression – This little monster came into my life ten years after I was diagnosed. It’s one of the common symptoms of MS and to be honest one of the tougher ones to deal with.
- Muscle cramps and spasms – These started over the last few years. The worst is when I cramp in my stomach and can’t breathe.
- Balance – My balance began to falter about 15 years ago.
- Strength in my legs – This is more recent. If I sit on the floor I must use my hands to get up. If I have a bath I need help to get out.
- Insomnia –Although I get exhausted there are times when I just can’t get to sleep no matter how tired I get.
Multiple sclerosis affects everyone differently.
What symptoms do you experience?
Vivian was diagnosed with MS in March 1999, although symptoms began in 1995. I previously worked as a financial adviser but had to retired due to the worsening of my symptoms. On the positive side, more free time allows me to work on my writing. I am 43 years old, married with two beautiful girls, aged 14 and 11 and reside in Australia.
You may also enjoy reading other of Vivan’s writing: JK Rowling fund trial for Secondary Progressive MS and Bioten found to help Progressive Multiple Sclerosis.